Pictured above: Some of the spectacular riders from the 2008 event.
Sixty-Five Miles for "Sixty-Five Roses"
A bike tour for Cystic Fibrosis,
sponsored by Lake Compounce
Ride has been canceled for 2009 due to health issues.
We thank you for you interest.
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Cystic Fibrosis (CF) :
* is a hereditary disease that affects mainly the lungs and digestive system, causing progressive disability, and, for most, early death.
* is one of the most common life-shortening, childhood-onset inherited diseases.
* In the Unites States, approximately 30,000 individuals have CF; 1 in 3900 children is born with CF and most are diagnosed by 6 months of age.
* Average life expectancy is around 36 years; advances in treatments mean a baby born today could expect to live longer.
* There is currently no cure for CF.
Why "Sixty-Five Roses"?
"65 Roses" is what some children with Cystic Fibrosis call their disease because the words are much easier for them to pronounce.
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IMPORTANT - for the health of CFers attending this event:
Because of risks to people with cystic fibrosis (CF), individuals with a confirmed sputum culture for Burkholderia cepacia complex shall not attend this event. This is because B. cepacia can be passed between individuals who have CF through close proximity. B. cepacia infection in a person with CF can cause serious respiratory illness and, in some patients, may lead to death. Despite this policy, there still might be some individuals with B. cepacia in attendance. B. cepacia is not a risk for otherwise healthy individuals. For alternative ways to participate and for more information about this policy, please contact the CF Foundation at (800) FIGHT-CF or visit our web site at www.cff.org. Consult your CF Care Center physician with medical questions.